Posts by lucasjohn
Infant son’s rare genetic disease inspire Mesa couple
Twenty-four hours after the birth of their son, a Mesa couple’s lives were turned upside down after learning he was born with a rare medical condition. For weeks, in between hospital stays and new challenges, Brandon and Chancee Culp never gave up hope and now they’re raising awareness and helping families in similar situations. The…
Read MoreNIH renews $13M contract with Penn’s gene therapy program
The National Institutes of Health has once again renewed a five-year contract with the University of Pennsylvania’s gene therapy program, which will receive $13 million to support the advancement of gene-therapy research to the clinic. The contract was awarded by National Heart, Lung and Blood Institute to what operates as the Gene Therapy Program Preclinical…
Read MoreFamily hopes to see rare medical condition eradicated
MESA — Guided by faith, an Arizona family is on a mission to raise awareness of and eradicate a rare genetic condition that impacts about 500 children every year, including their toddler son. Along the way, they also hope to bring comfort and support to other families whose children face life-threatening medical conditions. “Our first…
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