Posts by lucasjohn
Notre Dame Day 2020
Donate to the Boler-Parseghian Center for Rare Disease in support of NKH Research. Make a minimum donation of $10 to cast your “Vote” for the NKH Research project to win a scholarship for NKH Research at Notre Dame. About ND Day:We are excited to come together once again for a special celebration of the University…
Read MorePsalms 91 Equipped
You live in the shelter of the most high God. He alone is your place of safety, and we need to trust Him. Each morning we make sure we are “Psalms 91 Equipped” which declares protection and safety despite circumstances. We pray this Psalm over Lucas every day and believe that God is not only…
Read MoreSouthport Mum renews appeal for daughter with rare disorder
Submitted by Sarah Steel Having been featured in the Liverpool ECHO last year, Sarah Steel, a mother from Southport whose daughter, Isla, suffers from a rare metabolic disorder, is now renewing her daughter’s appeal in an effort to generate funding for scientists to explore gene therapy trials. In 2018, after discovering little Isla’s hands were twitching, Doctors…
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