Every day we bring hope and healing to families in the NICU and children with rare diseases.

  • We raise funds for rare disease research.
  • We raise funds for gene replacement therapy.
  • We offer scholarships and care kits for NICU families.
  • We offer financial support to families with children diagnosed with rare diseases.


In the News

Southport Mum renews appeal for daughter with rare disorder

Submitted by Sarah Steel Having been featured in the Liverpool ECHO last year, Sarah Steel, a mother from Southport whose daughter, Isla, suffers from a rare metabolic disorder, is now renewing her daughter’s appeal in an effort to generate funding for scientists to explore gene therapy trials. In 2018,

Mesa family hosting virtual walkathon for NKH awareness

MESA, AZ (3TV/CBS 5) – A Mesa family is hosting a “Zoom the Room” virtual walkathon to raise awareness for NKH and money for gene replacement therapy research, which could be life-saving for their little boy. Click to Watch video of the story on AZ Family. Lucas Launched for Fundraising for Rare Disease Video Conferencing Lucas John Foundation is Actively Working to Save Children with Orphaned Rare Diseases FOR IMMEDIATE RELEASE   May 2020 (Mesa, Arizona) – The family of Brandon and Chancee Culp in Mesa, Arizona, is fighting for the life of their two-year-old son, Lucas John Culp.



Providing educational resources, and emotional support for families in NICU.


Investing in research for all NICU children, rare diseases, NKH and Gene therapy.


Providing financial support for families in the NICU and offering ongoing resources.


Offering funding scholarships for families to help with the expenses of therapy.

Your Support Makes a Difference

  • Postpartum care kits for moms during NICU stay
  • Easy slip-on robes for mother’s for skin-to-skin
  • Lunch sacks for grab-n-go during NICU stay
  • Research funding for RARE diseases
  • Research funding for gene therapy for NKH
  • Create a fund for free DNA testing for parents and family members
  • Create a fund for express labs for families
  • Create a budget for scholarships for cold laser and other alternative therapies
  • Funding for newborn movement assessment subscriptions
Virtual Walkathon for NKH
Turn steps into dollars for charity
Walk in place as we shelter in place.
Start a Team Today!


 5 Acts of Kindness.
Donate $5.00 to NKH research.
Nominate 5 friends to join in!



Lucas John Foundation
PayPal Giving Fund


Gazelle as our mascot

Deliver yourself like a gazelle from the hunter’s hand. Proverbs 6:5

The gazelle has the ability to escape its predator by sheer speed and determination with a fighting spirit to never give up! It’s why we chose this animal to be our foundation character. We want you to fight for your baby no matter what you are told from the medical doctors.


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As a non-profit, we rely on donations to fund and offer support to improve the quality of life for families in the NICU and children with RARE diseases.
Lucas John Foundation is registered with the IRS as 501(c)3 (ID: 83-3683882) tax-exempt status.
AZ Nonprofit corporation established, January 19, 2019.

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Thank You For Your Support!

Alyssa Lance, Amber Brumley, Andrea Johnson, Anumed International, April Lea, Ashley Masterson, Bailey Jervis, Brandi Symanski, Carl Radford, Carla Sapucci, Carol Ensminger, Carole Rawlinson, Carolyn Questad, Cathy Wild, Chad Culp, Chancee Womack-Culp, Chelsea Sloan, Christian Weninger, Christine Stiles, Daniel Roberts, Darla Lea, Debbie Lewis, Debbie Sidwell, Deborah Trenary, Debra Alexander, Donald Vaughn, Doreen Barons, Eddie Tibbs, Emerge Elite, Emily Richey, Ericka Meik, Estelle Paresi, Facebook Payments Inc, Francesa Kennedy, Gemma Kelsall, Glenda Vaughn, Gloria Heater, Goshen Life, Grace Mulder, Grace Weninger, Jade Loftus, James & Sharon Womack, Jane Thomas, Janell Mihailovich, Janet Weninger, Jason Stephens, Jodie Wood, Joseph Hardin, Josephine Muela, Joshua Salas, Joyce Spurling, Judith Salas, Karen Bain, Karen Saif, Kate Wilson, Kathryn Thompson, Katie Toner, Kaylea Jameson, Kelly Abbott, Kevin Kelly, Kim Cusimano, Kimberly Kilgore, Kirsten Swales ND, Kirsty Short-Tonge, Kourtney Terhune, Kristy Wisrock, Leah Williamson, Leanard Altabet, Leigh Anne Sirvent, Lesley Fetterman, Leslie Anderson, Lindsay Cloudy, Lindsay Pierce, Lisa Gottes, Little Choices Matter, Lori Holstein, Louise Maguire, Lucy Semple, Luke Smith, Maria Barnes, Mark Klair, Mary Allen, Mary Press, Mary Ramirez, Matthew Colfar, Michael Allen, Michelle Lesbirel, Musclemayapparel, Network for Good, Paul Cummings, Paul Duncan, Pauls Paints, Paypal Here, Penn Jackson, Randy & Whitney Womack, Rebecca Lindsey, Ronald & Diana Vaughn, Ruben Vasquez, Sarah Steel, SCU Community Foundation, SG Hosting Inc, Shanie Wignall, Sharon Smith, Shawna Culp, Shawna Sparks, Shirley Jones, Sins and sisters Originals, Sophie Evans, Stephen Dodd, Steven & Florence Mejeur, Tana Stephens, TayMade Photography, Taylor Lea, Thomas Robertson, Traci Derringer, Tracy Poston, Whitney Womack, Yankee Candle, Zach Abbott,