BRINGING LIGHT DURING THE DARKEST DAYS
Every day we bring hope and healing to families in the NICU and children with rare diseases.
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We raise funds for rare disease research.
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We raise funds for gene replacement therapy.
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We offer scholarships and care kits for NICU families.
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We offer financial support to families with children diagnosed with rare diseases.
RAISE YOUR HELPING HAND FOR THE LITTLE ONES!
In the News
Southport Mum renews appeal for daughter with rare disorder
Submitted by Sarah Steel Having been featured in the Liverpool ECHO last year, Sarah Steel, a mother from Southport whose daughter, Isla, suffers from a rare metabolic disorder, is now renewing her daughter’s appeal in an effort to generate funding for scientists to explore gene therapy trials. In 2018,
Mesa family hosting virtual walkathon for NKH awareness
MESA, AZ (3TV/CBS 5) – A Mesa family is hosting a “Zoom the Room” virtual walkathon to raise awareness for NKH and money for gene replacement therapy research, which could be life-saving for their little boy. Click to Watch video of the story on AZ Family. Lucas
ZoomWalkathon.com Launched for Fundraising for Rare Disease
ZoomWalkathon.com Video Conferencing Lucas John Foundation is Actively Working to Save Children with Orphaned Rare Diseases FOR IMMEDIATE RELEASE May 2020 (Mesa, Arizona) – The family of Brandon and Chancee Culp in Mesa, Arizona, is fighting for the life of their two-year-old son, Lucas John Culp.
WHAT WE DO
Your Support Makes a Difference
- Postpartum care kits for moms during NICU stay
- Easy slip-on robes for mother’s for skin-to-skin
- Lunch sacks for grab-n-go during NICU stay
- Research funding for RARE diseases
- Research funding for gene therapy for NKH
- Create a fund for free DNA testing for parents and family members
- Create a fund for express labs for families
- Create a budget for scholarships for cold laser and other alternative therapies
- Funding for newborn movement assessment subscriptions
Virtual Walkathon for NKH
Turn steps into dollars for charity
Walk in place as we shelter in place.
Start a Team Today!
SavingLucas.com
#NKH5Challenge
5 Acts of Kindness.
Donate $5.00 to NKH research.
Nominate 5 friends to join in!
SUPPORT OUR BABIES!
Gazelle as our mascot
Deliver yourself like a gazelle from the hunter’s hand. Proverbs 6:5
The gazelle has the ability to escape its predator by sheer speed and determination with a fighting spirit to never give up! It’s why we chose this animal to be our foundation character. We want you to fight for your baby no matter what you are told from the medical doctors.
PROGRESS AT THE SPEED OF LIGHT
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As a non-profit, we rely on donations to fund and offer support to improve the quality of life for families in the NICU and children with RARE diseases.
Lucas John Foundation is registered with the IRS as 501(c)3 (ID: 83-3683882) tax-exempt status.
AZ Nonprofit corporation established, January 19, 2019.
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